Remedies A-Z

My GP has likened curing ME/CFS to a large jigsaw puzzle. There is no one magic pill. Instead it takes a plethora of different things that eventually fit together to solve the overall puzzle, well that’s the hope anyway.

Here’s an A-Z list of all the remedies, treatments and strategies I have tried in the hope of fixing my bizarro body and curing, or at least improving, my ME/CFS symptoms. Some have worked, some have not. Some are a bit weird,  some extremely strange. Some are just wonderful that I wouldn’t be without and others I wouldn’t touch again with a barge pole! For a more detailed overview of my strategy to recover from ME/CFS have a look at my strategy page.

Words in bold show the main treatment and remedy paths that I use, with a lot of the other items fitting under one of these headings, and the more ♥s the better I have found the remedy.

  • Activity Grids
  • Acupunture ♥♥ (don’t be afraid of the needles, it really helps me)
  • Alkaline Eating
  • Amitriptyline ♥♥
  • Autogenic relaxation ♥
  • Caffeine – avoid
  • Cipralex ♥
  • Clinical Hypnotherapy
  • Co-codamol  ♥ ♥♥
  • Co-enzyme Q10 ♥♥
  • Cognitive Behavioural Therapy
  • Colonic Hydrotherapy
  • Compression Stockings ♥ ♥♥
  • Cranial Osteopathy (pretty odd)
  • Daily Routine ♥♥♥♥ (I’d literally be lost without it)
  • Dairy-Free ♥♥♥
  • Diet ♥♥
  • D-Ribose ♥♥♥♥
  • Dr Wilson’s Dynamite – tasted completely and utterly foul and didn’t do much, if anything, for my energy
  • Eating regularly ♥♥
  • Emotional Freedom Technique ♥
  • Enadh Nadh Co-enzyme vitamin B3 ♥♥
  • Epsom Salt Baths ♥
  • Fludrocortisone ♥♥
  • FODMAP free Diet
  • Gaba
  • Gluten-Free ♥♥♥♥
  • Homeopathy
  • Hormone Replacement Therapy – Extremely expensive, made me very spotty and much fatter, little impact on my energy.
  • Journal
  • Kinesiology (very odd though did seem to be accurate in diagnosis)
  • Levothyroxine
  • Light Box ♥ ♥
  • Lightning Process ♥♥♥ ♥♥♥ ♥♥♥ ♥♥♥ ♥♥♥ ♥♥♥ ♥♥♥
  • Linseed ♥
  • Magnesium
  • Meditation ♥♥♥
  • Melatonin ♥♥♥♥
  • Mindfulness ♥♥
  • Minimal (red) Meat ♥
  • Neuro-Linguistic Programming (NLP) ♥♥♥
  • Nutritionist Consultation 
  • Pacing  ♥♥♥
  • Physiotherapy ♥♥♥♥♥
  • Positivity ♥♥
  • Prescription Drugs ♥♥♥
  • Pro-biotics
  • Protein rich Diet 
  • Reflexology 
  • Rests  (absolutely essential)
  • Salt – daily dose
  • Shiatsu massage
  • Soluble fibre diet  ♥♥♥
  • Stress release exercises ♥
  • Sugar – low refined sugar diet 
  • Tiger Balm ♥ (amazing stuff)
  • Vegan Diet ♥♥♥ 
  • Vitamin B12 Injections 
  • Vitamin C supplement 
  • Vitamin D  
  • Walking – paced daily walks  
  • Water 
  • Wheelchair 
  • Yoga 
  • Yoga Nidra  (amazing rest)

Over time I hope to post about each of these individually, or at least the ones worth posting about, so this is purely a catch all list.

Updated 24th November 2014

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14 Responses to “Remedies A-Z”

  1. desdemonad June 11, 2013 at 3:21 pm #

    good to know all the things you’ve tried and I like your system of grading. Excellent post.

  2. Amy Butchko (@AmyButchko) June 19, 2013 at 2:36 am #

    Jess…have you worked with anyone who knows digestive enzymes? I do that work here in the States (it’s fairly hands on), and it has helped many people with digestive problems. You can research more about it at the Loomis Institute and probably find a practitioner near you. I wish you the best in your search for a solution. I’ve had a “food baby” myself before which I and my naturopath have resolved, so I have much hope for you on the path! Amy

    • myjourneythrume June 19, 2013 at 7:11 am #

      Thanks for reading and commenting Amy. I haven’t looked into digestive enzymes before so that’s really helpful to know. I shall definitely investigate!

  3. celestedimilla August 25, 2013 at 4:31 am #

    Wow – that’s a lot of effort!! I guess it’s like inventing the light bulb – you have to keep failing until you figure out what works. I’m glad that you’ve discovered some things that help. Celeste 🙂

    • myjourneythrume August 25, 2013 at 7:50 am #

      Thank you Celeste 🙂 it’s all trial and error and keep going until we find that magic thing that makes me better 🙂

  4. dawnhosking September 11, 2013 at 4:13 pm #

    This is a really helpful list. I have had some success with DRibose too. I would love to try acupuncture as it was successful for a health issue that had plagued mum for ages. Only thing is it’s expensive in our locale. I’m interested in trying EFT too. B12 is an essential for me but I can’t get the injections so have the high strength methyl in sublingual form. 😉

    • myjourneythrume September 11, 2013 at 5:45 pm #

      Glad my list is helpful 🙂 I swear by DRibose. EFT is good, there are lots of health EFT tapping videos on you tube. It’s amazing how it really does help clear blocked thoughts and emotions.

  5. Claire September 14, 2013 at 7:57 am #

    Amazing! I’ve got my own plan that I’m working on, (http://livebedocfs.wordpress.com/2013/08/28/the-plan/) but I’d love to try some of these things.

    If you’re finding that compression stockings are working, could it be that you’re got POTS as well? (I haven’t had a chance to go through your amazing blog yet) I ask because this is something that a few doctors have suggested I have in conjunction with CFS. Attacking the POTS really helps with the CFS too!

    • myjourneythrume September 14, 2013 at 8:17 am #

      You’re right my specialist does think I have POTS too! I should really update my about me page to reflect that! I think POTS is something that often develops alongside ME/CFS due to deconditioning I think anyway! Compression stockings do really help me as does a daily dose of salt – half a teaspoon dissolved in hot water, sounds gross (and it is!) but it really helps with my dizziness.

  6. Laina April 12, 2014 at 10:44 pm #

    I have tried several of these but not all of them. I’m interested that you find d-ribose so helpful. I had stopped taking them bc I didn’t feel they were helping me but this encourages me to try again.

    Could you talk a little bit about your daily routine? – you have 4 stars by it and I’m interested in what specifically is helpful about your routine. Is it just having the structure or is it specific things you do that you find helpful?

    Also, you have something like 18 hearts next to lightning processing. 🙂
    I’ve never heard of it. . . What does it do for you?

    I have ME and have also been diagnosed with neurally mediated hypotension – which causes constant fainting, black outs, and dizziness. It seems to go hand in hand with ME. Believe it or not I find eating a pickle every day to be extremely and immediately helpful. In fact – it is what they suggest doing because it is as effective as the steroid they use to treat it. Wierd, i know. But it works. (My doctor actually recommended it before the steroid. She is a specialist in ME. )

    I would like to try some of the things on this list. Thank you for making it available!

  7. Laina April 12, 2014 at 11:00 pm #

    I’m reading through more of your posts and notice that you talk about the lightning processing in more detail. Just disregard any questions of mine above that you have already answered. I will keep reading. 🙂

    • myjourneythrume June 24, 2014 at 8:23 am #

      Hi, no worries at all. If you have any questions that my posts don’t cover, please just get in touch and ask. I am so much better now and it’s largely thanks to the Lightening Process. It’s not a magic cure, it takes time and persistent application but it’s well worth trying.

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  1. 30 Things You May Not Know About My Invisible Illness | my journey thru M.E. - September 3, 2013

    […] Remedies A-Z […]

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