FAQs

WHAT IS M.E.?

M.E. stands for Myalgic Encephalomyelitis.

It is a chronic and highly debilitating illness that affects a number of the body’s systems, especially the nervous and immune systems.

M.E. is also known has C.F.S. which stands for Chronic Fatigue Syndrome. It is sometimes also called Post Viral Fatigue Syndrome.

M.E.  is an illness with many names. On My Journey Thru M.E. for simplicity I use the abbreviation ME/CFS whenever I am referring to this illness.

WHAT ARE THE SYMPTOMS OF ME/CFS?

The main symptoms of ME/CFS are persistent and profound fatigue (not resolved by rest or sleep) and muscular skeletal pain (myalgia).

The physical symptoms are exacerbated by both physical and mental activity. The level of fatigue and pain experienced by ME/CFS sufferers can be equal to that of Multiple Sclerosis, Lupus and Rheumatoid Arthritis.

ME/CFS is a variable and fluctuating illness, and ME/CFS sufferers generally experience a whole raft of symptoms, in addition to fatigue and pain, including, but not limited to:

  • headaches (tension, pressure & migraines)
  • cognitive dysfunction – confusion, inability to concentrate, poor memory (‘brain fog’)
  • food intolerances & gastro, IBS type issues
  • sensitivity to heat, light and sound
  • body temperature imbalances (hot flushes, inability to get warm)
  • immune system weaknesses (frequent colds)
  • hormone imbalances (impact on menstrual cycle in women)
  • low libido
  • adrenal fatigue
  • acne
  • anxiety
  • poor tolerance to stress
  • sleep disturbances
  • sore throats
  • dizzyness
  • night sweats
  • muscle cramps, twitching & pins & needle sensations
  • blood sugar sensitivity
  • persistent ‘flu like’ symptoms

This is not an exhaustive list of symptoms by any means, just the most common symptoms of ME/CFS.

Sources: National Institute for Health and Clinical Excellence (NICE) guidelines on ME/CFS in the UKAction For ME and M.E. Chronic Fatigue Syndrome: A Practical Guide by Dr. Anne Macintyre.

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6 Responses to “FAQs”

  1. dawnhosking September 13, 2013 at 12:17 pm #

    Really good resource – super 😉

    • myjourneythrume September 13, 2013 at 3:43 pm #

      Thanks! I always mean to add more to it but somehow never get round to it. Most do that!

  2. Michelle September 18, 2013 at 12:51 pm #

    these symptoms sound a lot like fibromyalgia. i can relate.

    • myjourneythrume September 18, 2013 at 2:16 pm #

      ME/CFS is very similar to Fibromyalgia, the two pesky conditions share a lot of horrible similarities!

  3. Travis September 19, 2014 at 6:39 am #

    Just stumbled upon your blog while looking for some info about Tiger Balm… then got curious and found your FAQ page very informative. Nice! I also wanted to make a remark about the symptoms. They are VERY similar to chronic Lyme disease, and somewhat similar to a few other tick-borne diseases, like Bartonellosis (B. quintana or B. bacilliformis). The parallels to Lyme disease are impressive though! The list of symptoms is really the same, with the exception of acne and IBS (at least I don’t recall that being a component). I assume it’s because of similar varied and non-specific neuropathologic results of immune-mediated disease… It seems almost like the two syndromes have taken two different routes (humoral immunity for Lyme & cell mediated for ME) to get to the same place. I do not envy you. Your willingness to share and pass on info to others is undoubtedly appreciated by many. Utmost respect to you and wishing you all the best in your journey.
    And thanks for the Tiger Balm info 😉

    • myjourneythrume November 18, 2014 at 9:29 am #

      Hi Travis, thanks you so much for taking the time to read and for posting such a lovely and insightful comment. I know there is a lap over between Lyme disease and ME/CFS but had never known why, so your insight was very interesting. The symptoms are very similar and I was tested for Lyme at the beginning. I hope the tiger balm info was helpful and was what you were looking for. I love the stuff. I swear by it for relief of headaches and for easing muscle pain. I also have a little pot in my bag, never go anywhere without it!

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