Not worth it…

3 Feb
Calmer times. Watching the sunset from the Olympic National Park in Washington, April 2014.  © Jess Bruce 2015.

Calmer times. Watching the sunset from the Olympic National Park in Washington, May 2014. © Jess Bruce 2015.

Last week was a horrible week. It was very stressful. I definitely lost my positive persona and spent the time in a frustrated, angry mess. No help to anyone and most definitely no help to myself.

Stress is the blue touch paper for my ME/CFS. It is the single biggest trigger of symptoms. Always has been and still is, though most of the time now symptoms are much less, I guess, because I’m much better at handling stress…I think those closest to me may question that! Though all things being relative I am much better with stress than I used to be, esepcially as I no longer take any anxiety medication thanks to the debacle over Cipralex.

I’ve written numerous times about the cause and effect relationship of stress on ME/CFS. So I won’t go into lots of detail again now. Suffice to say that ME/CFS is a neurological disorder in which our stress response essentially becomes automated and permanently on. Every little thing (from washing our hair, to going shopping, to talking to friends etc) is seen as a threat by our poor ME/CFS addled bodies. Living in perpetual stress response is highly damaging to our bodies and results in the myriad of ME/CFS symptoms. I find this stuff fascinating. For me, it was the light bulb moment about my illness. It gave clarity where nothing else made sense. But as I say, I’ve written about it before, so won’t bore you with it again now.  If you want to read more, this post is a good starting point and also see this post on ME/CFS stress response and this post on the role of stress hormones in ME/CFS symptoms.

For the purpose of this post, all you need to remember is that stress is bad! It’s bad generally but for ME/CFS it’s especially bad! My ME/CFS is much better because my stress response is in check (in large part thanks to the Lightning Process and NLP techniques). My body no longer sees every day activities as a threat which has reduced my symptom load dramatically.

Whilst doing the laundry or going for a walk (or even a very very gentle jog!) are no longer threats, my stress response is still, more sensitive than that of a ‘normal’ totally healthy person.

Which brings me back to last week. Mr B and I are in the process, hopefully, touch wood, the very last stages, of selling our flat and buying a house. They (very wise people) say that moving house is one of the most stressful things you can do. I think also on that list is getting married, death and divorce. Oh wait, yes we’re planning our wedding and trying to move house…this was a well thought out plan. We’ll leave death and divorce far alone thank you very much. Do not want those anywhere near thank you.

If the actual logistics of packing all our stuff and physically getting it all out of this home into our next seems stressful, it is nothing compared to the ridiculous legal process of buying and selling houses in the UK (and probably many other countries too, but thankfully I’ve only had the joy horror of experiencing it in England). Our buyer is taking her own sweet time over the whole thing, being entirely uncommunicative, making up random issues to do with our flat in order to conceal the true issue (to do with her mortgage) and has delayed the whole transaction week after week – we were meant to exchange contracts before Christmas. And now it’s February and we are still waiting. The vendor, of the beautiful big house with the amazing kitchen, that we desperately want to move into, wants everything done yesterday (or preferably last month) and is, understandably, getting more and more annoyed. This is all going on either side of us, with Mr B and I are caught in the middle, terrified that at any moment the buyer will decide actually she doesn’t want to buy our flat anymore (beautiful perk of the English legal system being no one is legally bound to follow through on the transaction until contracts are exchanged which doesn’t happen until inquiries and searches are done) or the vendor deciding enough is enough and putting the house back on the market. The whole thing has been going since end of October and threatening to blow up since early December. So we’ve been walking on egg shells and living in a state of perpetual stress and uncertainty for months.

On top of all this, last week I received an email from the owner of the apartment we’d rented for the week of our wedding telling me our booking was cancelled and the apartment was no longer available. No apology or mention of the £1000 deposit we’d paid to secure it. Nothing. So now we face a battle to get our money back and the stress of finding an alternative rental. We booked the apartment last May. The options at this point, with 6 months to go are far fewer. We’d booked the apartment as a key part of doing the wedding in a Jess ME/CFS friendly way.

A few days earlier the wedding planner at our venue had told me that our credit card had been declined when she had tried to take the next installment of our payment. After 45 minutes on the phone to our bank I learnt that she had keyed in the wrong expiry date and that was the only reason the payment hadn’t gone through. This coupled with her sending me an updated contract without half the updates we’d discussed. Our original wedding planner sadly left our venue last month so I’m now dealing with a new woman. Can’t say I’m filled with confidence.

So house and wedding both going well.

Enter increasingly very emotional Jess whose fatigue is higher than it’s been for months. I’m back to falling asleep in the afternoon for a couple of hours; not being able to fall asleep at night, feeling nauseous, crying at the drop of a hat, snapping, being wiped out by meeting a friend and generally being a delightful mess. But I haven’t had a migraine, digestion is just about behaving (as well as it ever does) and my myalgia isn’t significantly worse. So hey, maybe I am actually better at dealing with stress these days.

Breaking point came on Thursday night. Our estate agent had phoned around 7 pm to tell us that the buyer had another issue (something do with a train line that is 3 miles from our flat…) despite two days earlier telling us she was basically ready, at long last, to exchange. After dinner, in the kitchen, me with my yellow rubber gloves on doing the washing up and unable to get noodles off the bottom of a saucepan. Total melt down. Tears streaming down my face, shaking and sobbing about how we’re never going to move, everything was going wrong with the wedding and I couldn’t take anymore. Mr B promptly took the saucepan off me….

My parents are now on the case to find a new Cambridge rental (delegation is key) and I’m focusing on staying calm about the house. Supposedly there’s only one point outstanding and then we’ll be able to exchange. I’ll believe it when it happens.

But for now I have to focus on looking after myself and shielding myself from getting too overwhelmed, anxious, upset, stressed (you name it) about it all. IT IS NOT WORTH MAKING MYSELF ILL OVER. The worst relapse I’ve had in the last 18 months was last summer when for a couple of weeks I was back to acute all over body pain, zero energy, crushing fatigue, awful digestion etc etc and that was because of the stress over our first buyer pulling out and us losing a house we wanted to buy – yes we have been trying to move since LAST JULY. It’s no wonder I’m stressed!

Moral of the story post: IT IS NOT WORTH MAKING MYSELF ILL OVER. Nothing is worth that. I will be repeating that statement a lot this week and using the Lightning Process to do calmness, along with lots of yoga, meditation and relaxation and being kind to myself. It is a stressful time, but I don’t have to get super stressed about it all. I am in control of how I feel/react. I have a choice and choose to be calm! I will sit back, breath and repeat IT IS NOT WORTH MAKING MYSELF ILL OVER.

Wish me luck.

10 Responses to “Not worth it…”

  1. thehomeschoolingdoctor February 4, 2015 at 12:53 pm #

    Ouch. I think when I connected the dots from the silly little word we throw around as “stress” to the actual chemical cascade it elicits in the body was when I felt like blinders had been taken off of my eyes. And frustration and despair at how it has become like a badge to see who can handle the most “stress.” Anyhow, now my husband and I are both backtracking to learn, like you, to retrain the brain to not “stress” over a missed flight or a burned dinner (okay, that’s my stress, not his) or someone calling in sick. Because all those little things still create cortisol, adrenaline, increased sugars, melatonin changes, etc. Even now, with a new baby, I am not “stressed” per se, but I am always busy non-stop. Even though I’ve practiced remaining calm and focused when she cries and fusses and all the other three are asking for things I need to help them with, I can see how it affects my stress, even though I’m working so hard for it not to, because my “weakest link” is my GI tract (and often my head too, foggy and headaches–but these symptoms are staying away!) and it is acting up as she has started to be more and more awake the last couple of months. I’ll keep working though. And you do too! I am so sorry how stressful this is! It is not so bad here, although still VERY stressful. There are time frames implemented and required here. But you can do this! You know you can! Just is going to take using all you’ve learned and perhaps some new things you’re still learning! ~~Terri

    • myjourneythrume February 6, 2015 at 9:48 am #

      Thank you Terri! Such kind, understanding and supportive words. I truly appreciate it. I am very much still learning. Each ‘challenge’ is another opportunity to learn and to realize how strong I am now and to learn some more. It is so refreshing to hear you, a medically trained doctor, talk about stress like that. It seems stress, along with food, are so often overlooked by doctors. I’m very sorry to hear your GI tract is causing you issues. Mine is too. It’s definitely one of my weak links and a sure sign that I need to pause and take stock when it starts playing up. Our bodies are amazing, as long as we listen, they tell us so much. How is baby girl doing? I hope you’re not too exhausted. A good friend has just had her second baby and she is finding it challenging. I can see how hard it is, being pulled in two different directions the whole time, so how you do with 4, I don’t know! You must be amazing, that’s the only explanation I can see 🙂

  2. Sophie33 March 3, 2015 at 9:58 am #

    I can relate a bit to your problem. We were about to buy a house, our dream house & we arranged the 1st deal at the notary. Then we had to wait, 3 to 4 months & finally, the owner didn’t want to sell anymore. We lawyered up & finally, we did get the house after 7 months! We rented an apartment but then we had to live at my parents’s house for 3 months! What a whole lot of uncertanty & worrying too! Finally, we got our dream house! So hang in there & good luck with it all! ! xxx
    Did you get the house finally? xxx

    • myjourneythrume March 3, 2015 at 10:09 am #

      We are still waiting! I’m so glad you got the house in the end! Thank you for the words of encouragement, I appreciate it a lot 😊 xxx

      • Sophie33 March 3, 2015 at 11:14 am #

        Have e a Nice day!

      • myjourneythrume March 3, 2015 at 2:25 pm #

        Thank you. And the amazing has just happened, we’ve finally exchanged! One big step closer to moving 😄

  3. Sophie33 March 3, 2015 at 3:06 pm #

    Yayyyy,…it was meant to happen! Xxx


  1. Get Me Some Head Space | my journey thru M.E. - February 9, 2015

    […] meditation works at calming our minds by reducing our stress responses (which as I mentioned in last week’s post is very important in ME/CFS).  As a total non-sciencey person, I appreciate the funny animations […]

  2. A Tactical Retreat | my journey thru M.E. - February 17, 2015

    […] week I made a tactical retreat, leaving the stress and uncertainty of our on again off again flat sale in London behind and made the 130 mile journey north to my parents’ house in […]

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: