My Journey Thru M.E. Part 2: 2012 Some Ups, More Downs

3 Dec

Here is the second installment of My Journey Thru M.E. If you missed part 1 you can read it here.  2012 was not a good year for me. It was the year I really began to understand my illness but also saw a lot of boom and bust and mismanagement of symptoms as well.  I was so desperate to find a way out. Although it made me sad to think about this tough time of my life in writing this post, more importantly it made me see how far I’ve come. Things did get better for me. Much much better. Stay tuned for my next post which I hope will give you hope and inspiration.

January 2012

Saw a hormone specialist who asked me a lot of embarrassing questions, took a lot of blood and scanned my bones for density. He put me on Hormone Replacement Therapy as a method of kick starting my body from the ME/CFS. All that happened was that my savings dwindled to cover the cost of the treatment, I had to slather myself in estrogen gel daily, I gained unwanted weight and my skin erupted into very bad acne that took nearly a year to clear. There was no identifiable improvement in energy. Persevered for 3 months with the treatment and then decided enough was enough.

April 2012

Decided (in hindsight wrongly) that I was well enough to return to my life with Mr B in London. Mum came down every few weeks to cook and stock my freezer with meals so all I had to do was reheat food. I could not have survived ‘as well as I did’ (all things being relative) without Mum’s help. She did the laundry, cleaned and generally kept me afloat.

July 2012

Having come across an ME/CFS NLP Recovery course in Wales, Mr B, my family and I went off for a very wet week in Wales. Felt hopeful and buoyed that there was light at the end of the tunnel. I learnt huge amounts about the science behind ME/CFS, neuroplasticity and autonomic stress responses in particular.

Returned to my parents having worn myself even further into the ground with trying to be back in London. Spent the summer on the sofa watching the Olympics on TV, using the NLP techniques I had learnt on the course with varying success. I drove for the first time in a year. I cooked dinner and could go out for a longer walk. I seemed  a lot better initially but it sadly didn’t last. A friendship I made on the Wales course did last though. Every cloud…

September 2012

Mr B and I went to Greece on holiday. After much persuasion by my family I agreed to using a wheelchair in the airport and getting special assistance with boarding the plane etc. A wonderful week at the time but left me with severe post exertion malaise for weeks when we got home.

October 2012

Went to Centre Parcs (holiday and leisure resort in England) for a long weekend with Mr B and his family to celebrate his Grandad’s 90th birthday.  Too unwell to cycle on a bike around the resort like a normal person I hired a mobility scooter to get around. I very acutely remember the pain I felt from trying to swim in the pool that weekend. I remember crying in a corner of the pool and ended up sat with Grandad watching everyone else have fun in the pool whilst I shook with exhaustion and pain.

After pushing myself too hard for too long over the previous months I ended up back at my parents in a severe relapse very ill and very sad. It wasn’t until the following July that I went home to London for more than a few days.

2013 was a better year. Stay tuned for my next post where things eventually started to improve for me.


5 Responses to “My Journey Thru M.E. Part 2: 2012 Some Ups, More Downs”

  1. thehomeschoolingdoctor December 4, 2014 at 7:52 pm #

    I remember some of these posts! How agonizing! What a horrible, strange illness.

    • myjourneythrume December 4, 2014 at 9:12 pm #

      Definitely horrible and definitely strange, cant disagree with you thats for sure!


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