Severe ME awareness today.

8 Aug

Spare a moment today to remember those suffering with the severest form of ME. Today has been designated international severe ME awareness day. This article gives insight into severe ME. Take a moment to read it and understand what severe ME is really like. Please share it, together lets raise awareness and understanding of this life ruining illness.

Thinking Love, No Twaddle

Severe ME dayA special day has been put aside to raise awareness, understanding and Remembrance for the 25% of ME sufferers who are very severely affected.

This article tells how the date of August 8th was chosen because it was the birthday of Sophia Mirza who died of ME after being abused by the hospital system and social workers who insisted she needed mental health treatment for what is well known to be a serious, life threatening disease. Sophia had an autopsy done thanks to the solid thinking of her mother and the medical examiner found from spinal fluid and other evidence just how desperately ill Sophia had been. As far as I am aware Sophia’s mother has not received so much as an apology for the shocking treatment her daughter was subjected to.

In the UK the 25% ME groupΒ work hard on behalf of those far too sick to campaign…

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2 Responses to “Severe ME awareness today.”

  1. Hayley-Eszti August 9, 2013 at 12:25 am #

    It’s so great that a day has been put aside for this. I actually had no idea about it until late in the day otherwise I would have posted more on twitter and made a dedicated post about it

    • myjourneythrume August 10, 2013 at 9:19 pm #

      I didn’t know about it til a few days before either but such a good idea to have a special day.

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