It has been a rather mixed week for me. Amidst the euphoric feeling of reaching day 100 of using the Lightning Process and doing so much better thanks to it, I’ve also had a raft of symptoms rear their ugly heads. I’m not sure why. I have a few theories but I’m trying hard not to over analyse (I’ll let you be the judge of how successful I’m being on that front…)
Taking the Lightning Process approach, I think it’s my body’s way of giving me ‘feedback’ it’s trying to tell me something that perhaps so far hasn’t quite got through to me…, slow down we’ve still got work to do. Keep using the LP, use it more intensely again, don’t eat meat, take it more gently….And boy is it going to town with telling me. Enough already body. I’m listening, you’ve got my attention, I get ‘it’…though still figuring out exactly what ‘it’ is.
It all began on Monday when my digestive system decided to go on strike. Big bloated belly is me with very little to no action in the waste disposal department and all the abdo pain joys that goes along hand in hand. This carried on for a few days only gradually improving yesterday. Today I still resemble a mildly pregnant lady with my swollen tummy.
But that’s not the worst of it. Nope just the beginning in fact.
Day 100 of A Life I Love
Tuesday was day 100 of me using the Lightning Process- woohooooo! I celebrated by going for a lovely walk with my Mum in the crisp winter sunshine. We walked 2.54 miles! Woop! I’ve been managing that sort of distance a couple of times a week with no ill effects since Christmas. Yay me. That was Tuesday morning. Tuesday afternoon saw me doing increasingly tired, a sleepy hangover tired rather than ME/CFS hit brick wall crippling tired, and in bed with a bad headache. This is the first headache for which I’ve had to pull out the big guns (extra strength co-codamol and darkened bedroom at 4 in the afternoon) in a long time, weeks if not months – the lightning process and/or the trigger point physio I’m having really seems to be working a treat. After the big guns were released and some uber gentle yoga (cue Mum and Me in legs up the wall pose) my head cleared tho the tiredness remained.
A Funny Turn
Wednesday saw me driving to our local Westfield shopping centre (literally 10 minutes away, I love where we live!) and Mum and I doing a spot of shopping. We’d been there about an hour, a good proportion of which had been spent sat down whilst my Mum drank the biggest coffee in the Universe (the mug had two handles!), when I suddenly became incredibly hot and tired. Within seconds my legs and arms felt heavy and incredibly weak. I was light-headed and could feel my heart racing. My legs and arms were throbbing and my hands were visibly trembling. I felt so shakey and week. It was horrible. Thank God Mum was with me. She steered me to the nearest seat, thankfully we were stood opposite a Costa coffee shop.With shaking arms I stuffed several fruit and nut quinoa cereal bars into my mouth along with gulps of fruit smoothie. This is sadly not my first ‘funny turn’, I know food usually helps but as with the last couple of times it has happened it took more food than it used to. I was still shaking and very white and my legs were throbbing. We put my legs up on a stool and gradually I felt the throbbing and heaviness subside and after about 30 minutes of sitting and several cups of green tea later I felt strong and stable enough to stand up. I was very close to tears during all this, not least because the ‘I thought I was better’ line and ‘why does this keep happening’ kept repeating in my head. Mum snapped me out of it ordering me to do the Lightning Process to calm myself down. Mum’s are always right aren’t they? I felt calmer and much less panicked after talking myself through the process.
Prior to doing the Lighting Process and taking back control of my body and my health these funny turns were a relatively regular occurrence for me; they were part of me doing ME/CFS and/or POTS. They had thankfully calmed down through the Autumn. But since Christmas they seem to be on the increase again. I had a similar incidence when I was out with Mr B just before New Years, once when I was at back at my parents’ last week and a couple of times after showering. The latter makes me think it’s something to do with orthostatic intolerance and standing up for too long. But yesterday I was wearing compression stockings which usually helps. My latest bloodwork is better than my GP has ever seen from me so I’m at a bit of a loss as to what’s causing it which makes it pretty hard to prevent. My specialist is helpfully on holiday for the next month (probably on his yacht or at his house in Barbados, something tells me I pay him too much…) so instead I’ve contacted my physio, my dietician and my GP to see if anyone has any advice. Feel free to chip in if you have something that might help. Please!
I felt pretty dazed and a bit shakey for the rest of Wednesday and very tired. Yesterday, Thursday was better, no funny turns – yippee! But the myalgia and general achiness in my arms, neck and shoulders was far worse than it has been for months. My shoulders and collarbone particularly hurt. You may wonder how a collarbone (rest assured I didn’t bash or break it) can hurt, me too, but it did.
Chicken Tonight…errr No!
I have a burgeoning theory that this ‘bad’ week is possibly down to food; more precisely, down to chicken. That may sound crazy, maybe it is, I don’t know. I had chicken (a nice big breast baked in jamaican spices) on Sunday for the first time in 3 weeks. Since Christmas I’ve been eating a plant based diet and avoiding all meat, both red and white, as I suspect this will give me better energy and improved overall health. More on that in future posts. So I had chicken on Sunday and then everything has unravelled. It would seem logical and pretty obvious to tie the constipation and bloating to the chicken and probably the tiredness and the headache too – the toxins from the poorly digested meat in my gut could logically have caused that. But can it be that simple? Is my gut really at the heart of everything? To be honest I vehemently hope it is, because that would be a pretty easy thing to solve, bye bye chicken (Mr B trembles in horror!! Don’t worry my love I’ll still cook you meat…) But it almost seems too simple. And the funny turn? Given they’ve happened both when I’ve eaten meat and when I haven’t it would seem to me that that is something separate, but who knows. I’m going to try and trace a pattern through it all. But it’s kind like wading through waist high mud….
I perhaps shouldn’t be
complaining focusing on the symptoms this week and instead be grateful that I have been relatively spared the pain and discomfort of ME/CFS in recent months thanks to using the Lightning Process. When I think of fellow spoonies still suffering 24/7 and compared to how I was when I was doing genius level ME/CFS I really have nothing to complain about. And I am grateful for that. Honestly I am. But I’m also rather frustrated and flabbergasted. I want to know why, why God damn-it why?! If only my body could talk in actual words, then maybe I’d know what the heck was going on.
Until then, am I talking gibberish? Or does my chicken theory have legs? (hehe!)
Anyone experienced anything post Lightning Process symptom flares? How did you cope with it?
And if anyone can shed any light on the ‘funny turn’ in the absence of my specialist, then I’ll be forever in your debt :-)
For now, yes body, I am listening to you, but could you send me an email with what you’re trying to say clearly typed please? I’m a lawyer, I like precision, enough already with these vague signs! Many thanks.